Rare disease communities in China help shape AI and open-source tools around everyday needs that standard products overlook
For Aili, the starting point for innovation was a cup, a pair of chopsticks and a computer keyboard - everyday objects that had become difficult to use as his muscles weakened. Living with facioscapulohumeral muscular dystrophy (FSHD), Aili wanted assistance with movements that other people take for granted. When he brought those difficulties to science and technology educator Sun Dawei and his students, the discussions gradually became a design brief.